Friend – “What’s it like to have CF?”
Me – “What’s it like to be healthy?”
Can a normal healthy person really say what it’s like to be a healthy person? Can I really say what it’s like to have CF? This CF life is my normal, as you being healthy is your normal.
With having CF, I’ll never know what it is truly like to be healthy. To have no health problems, to not have to worry about prescriptions, to not have to remember to take medication, to not have to adhere to a exercise/physiotherapy regime everyday and to not have to worry about what the future may or may not bring.
I often wonder and imagine what it would be like to live a life without taking countless medications, to not have to fit in tedious rounds of physio into my day and not have to worry about my lungs turning to shit before the age of 30.
I’ve said previously that I was given this life because I was strong enough to live it, like so many others, but you can’t help but argue why it had to be us that got picked on to live this CF life. Not just people with CF, why are some people born with other illnesses, disabilities or develop cancer in life?
I always think that maybe in a past life, I did something so terrible that in this life I may have been punished. But it’s mainly down to genetics. I can’t really blame anything or anyone else but that.
If you’re healthy and are reading this post, could you seriously answer the question “What’s it like to be healthy?”. Some assume that I can easily answer what it’s like to have CF, because it’s something that they are never going to experience or live with so they want to know what it’s like to have an illness. It would be the same if I asked you what it’s like to be healthy, I will never know the life of being healthy, but could you really tell me what it’s like to live that life?
I don’t think none of us could compare our lives with each other. We all live different lives, we all go through different things. Would I change my life if it meant getting rid of CF? Yes, absolutely. But if it meant me living a completely different life which I hated and one which made me extremely unhappy, then I would have to think about that. I’m not saying I want a life of CF or ever asked for it, but if my life is going to be shorter than everybody else’s, I would rather it be a happy one than live a longer life that was a miserable and unhappy one.
So next time you’re wondering what it’s like for your friend, family member, neighbour or online friend to live with a disability or illness, often they’re wondering what it’s like to be healthy.